Like regular manners, the answer to this question is different for everyone. However, when it comes to sharing gluten-free information – likely in an effort to help someone – someĀ people can come off as being rude or imposing their rules for living gluten-free on others. It’s doubtful that people who do this think they are being rude – or pushy – in any way. Their intent is to help someone else out. At least in most cases that is the situation, I would hope.
One of the main problems in our community is that not everyone agrees on what is and is not gluten-free and a zillion other things. Here is the way I see it. If people want to drink potato vodka – so be it. In the “foods allowed” section in Shelley Case’s book, it says “rye whiskey, scotch whiskey, gin, vodka, and bourbon are distilled from a mash of fermented grains. Even though they are derived from a gluten-containing grain, the distillation process removes the gluten from the purified final product.” So, people should drink what they want to and let others do the same.
There are at least ten other such ingredients that this problem applies to. From blue cheese to distilled (not malt) vinegars to vanilla (natural, imitation, and synthetic) – incorrect information swirls about them all. Anyone who wants to avoid blue cheese should do so. I can’t imagine life without it but that’s just me. I like to support brands that will state their product is gluten-free because I’d rather give my money to companies that take the time to find out the gluten status of their products. However, many brands that won’t claim their cheese is gluten-free have been tested and shown to be exactly that.
Here is what I really wonder about when I see so much confusion in our community, that doesn’t seem to have improved in the four years I’ve been gluten-free. Why does it matter to anyone what someone else chooses to eat? Unless it’s a mother leading her child through life safely gluten-free, I don’t get why people care what other people are eating. It’s enough for me to keep up with my own gluten-free lifestyle without having to concern myself with what others choose to eat or avoid. You can’t imagine how many people have told me they have never heard of Shelley Case, or bought one (authoritatively proven) book about living gluten-free who think they know everything about what is and is not gluten-free. Unfortunately, what some of these people are doing is spreading gluten-free rumors, which only adds to the problem this community has been facing for decades.
Celiac disease is the number one genetic condition in the world – not this country – the world. Obviously, a big reason that a huge portion of the general population doesn’t know about it, is that there is no medication for the condition. Seeing a gluten-free label in the grocery store doesn’t qualify someone as knowing about celiac disease, of course. When I look around and see the misinformation floating around – even in some new internet articles – it’s clear to me why we have not come farther than we have. Is it fair for us to complain about the FDA (as I often do) not ruling on gluten-free labeling in the U.S. yet? Lately, I’ve been thinking that maybe it is not fair at all. It’s doubtful that the FDA will be able to “do the right thing” for our community since that means different things to so many people living gluten-free.
Kim says
Tiffany,
Your article is spot on! I often run across many of the same issues that you are talking about & while I feel okay with my choices for myself & my son, I know that there are some people who will only eat food that says “gluten-free” on the label, and that is fine.
Thanks for sharing this. š
Kim
Anne Steib says
Great article Tiffany! I still drink regular vodka by the way and use blue cheese too! Like you, I appreciate when something is labeled gluten-free, or it is found in the FAQ section of a web site. But I also eat a lot of foods I ate before that are mainstream products that also happen to be gluten-free. Everyone needs to do what they are comfortable with for themselves.
Heather says
You’re so right that we are often faced with misinformation and partial information about what is safe for those of us with gluten-intolerance to eat. I’ve definitely learned to be a label-reader. The FDA food allergen labeling only partly protects those of us who are gluten-intolerant. I’ve been excited to pick something up that doesn’t list wheat as an allergen, only to read the rest of the ingredients label and find that there is barley in the product. Barley doesn’t have to be listed as an allergen (nor does rye or spelt). “Wheat-free” doesn’t mean “Gluten-free”. It definitely takes some work to keep oneself safe on a gluten free diet. (However, it’s well worth the effort!)
Tiffany Janes says
Thanks Ladies! I have no problem letting everyone make their own choices about what they want to eat (or avoid eating) and just expect others to do the same. And Heather, I totally agree with you. It’s unfortunate that all forms of gluten do not have to be listed in ingredients (in the U.S.) but it’s worth the extra effort to learn how to eat safely in order to keep from getting sick.
Tiffany Jakubowski says
Great article!! You know that I totally agree with you. I love bleu cheese, and I take risks that I wouldn’t advise other people to take if they aren’t comfortable with it (like eating out, which we do a lot). I am totally fine with people eating whatever they want to, as long as they aren’t spreading bad information. That is what really gets me!
Gloriana says
Gosh, I wish I would have had that ifnomtraion earlier!