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You are here: Home / Archives for Celiac Disease / Children

Children

Children with Celiac Disease FAQ

Last Updated on March 11, 2023 by the Celiac-Disease.com Staff Leave a Comment

Celiac is an autoimmune disease that can develop at any point in life, from a newborn child to a senior adult. If there is a history of the disease within the family, there are greater risks for others to develop the disease as well. For a child who has been diagnosed with celiac disease, it can be devastating, as it entirely alters what he can eat, making him different from his peers.

What is the Cause of Celiac Disease?

While it is not exactly known what causes Celiac Disease, it is known that it affects the villi located in the small intestines. The villi are tiny finger-like projections that absorb gluten and other proteins for the body to use, including those from wheat, rye, barley, and other grains. If the disease is left untreated, the body’s ability to absorb gluten correctly is altered, thus making it dangerous for a child to eat anything containing gluten.

The problem is that many children will go without diagnosis and treatment of celiac disease because it is usually passed off as a stomach virus or some other intestinal disorder. It is not until the disease has progressed that a child is correctly diagnosed.

What are the Signs and Symptoms of Celiac Disease?

There are many signs and symptoms of celiac disease. It is important to know that the disease can affect each person differently. This is one of the causes of delayed diagnosis. Investigate having your child checked for celiac if he displays one or more of the following signs and symptoms:

  • Constipation or diarrhea
  • Abdominal pain
  • Loss of appetite
  • Nausea and/or vomiting
  • Weight loss
  • Feeling tired
  • Skin rash

Even if symptoms appear to come and go, meaning your child feels terrible one day and better the next day, do not ignore what he is feeling. Because celiac is a chronic disease, this will happen but does not make the disease any less serious.

What are the Effects of Celiac Disease?

There are many conditions that are often associated with celiac disease. Some of these include:

  • Anemia
  • Thyroid disease
  • Lactose intolerance
  • Infertility
  • Systemic lupus
  • Malnutrition
  • Type 1 diabetes
  • Other neurological disorders

This means that if a child has celiac disease, he is more susceptible to contracting one or more of the above conditions as well. This is mainly due to the fact that the body is not receiving the proper nutrition it needs to function, and because of the damage to the small intestines. That is why it is important to get a diagnosis made as quickly as possible.

How Do Doctors Test for Celiac Disease?

There are four main blood tests used to diagnose celiac disease. The four together are called the “Celiac Blood Panel.” These include:

  • EMA (Immunoglobulin A anti-endomysium antibodies)
  • AGA (IgA anti-gliadin antibodies)
  • AGG (IgG anti-gliadin antibodies)
  • tTGA (IgA anti-tissue transglutaminase)

If one or more of these tests come back positive for malabsorption, a biopsy may be ordered to further confirm the disease. A biopsy entails taking small pieces of tissue from the villi to look for damage. All of this helps a physician make a correct diagnosis of the disease.

Other tests may be ordered in addition to the above, including stool testing, vitamin D levels, and others. These will be ordered based on the signs and symptoms presented.

What is the Treatment for Celiac Disease?

A child that suffers from celiac disease must follow a gluten-free diet for the rest of his life. This is the only way for the villi to heal and stay healed. A gluten-free diet means you must avoid all foods, drinks, and medications that contain any wheat, rye, barley, or oats. Food labels must be read very carefully so to avoid any types of these grains. Wheat and barley are especially abundant in our diet, thus making this a difficult diet to keep. However, with planning and education, it can be done.

There are vitamins and minerals that can also be prescribed to help with the nutritional deficiencies that are often present with the disease. Many times, it is difficult to get a child to take these supplements. There are several forms of these available, such as in liquid form, that can be added to certain foods.

A child with this disease is very likely to feel angry for having this disease and not being able to eat as all the other kids. If there is depression involved, please seek counseling as well. There are also several online support groups that can provide tips for managing the disease.

There is no way to prevent developing this disease. The only issue is to have it diagnosed quickly so that the change in diet can begin immediately. A child will need plenty of support, especially in the initial stage of diagnosis.

Note: This article is not intended to be medical advice. Always contact your child’s pediatrician for proper diagnosis, treatment, and care of your child.

Tell the USDA We Want Gluten-Free Lunches

Last Updated on March 12, 2023 by the Celiac-Disease.com Staff 5 Comments

Unless you have a child with Celiac Disease, you probably aren’t aware of the difficulty involved with helping a child to stay gluten-free while in school. This is especially true when lunch rolls around and all the other kids are enjoying their hot lunches.

Vanessa of Beyond Rice Cakes has been a vocal leader of sorts when it comes to this area and is leading a campaign urging people to tell the USDA to provide gluten-free options. This is a no-brainer for people who have children with Celiac Disease, but others may not think of it, so I wanted to draw everyone’s attention to Vanessa’s post.

According to Vanessa:

Currently the National School Lunch Program does not include any provisions for gluten-free food. The good news is that the U.S. Department of Agriculture is revising the Child Nutrition Act and wants to hear from you to help guide the revision process!

To give you a little background, the Child Nutrition Act includes legislation for the National School Lunch Program. This is the program that provides schools with federal assistance for school lunches. In 2009, the act will be reauthorized and, to help ensure the needs of all Americans are met, the USDA is accepting input on what needs to be changed to improve the program.

Please help improve the lives of children with celiac disease by sending your comments to the USDA. You can fax comments to 703-305-2879 or submit comments online.

The deadline for submission is October 15, 2008.

Vanessa goes on to provide some key points to remember as you submit your request to the USDA, so you’ll want to check out her post.

Remember, everyone with Celiac Disease needs to stick together and someone needs to speak up for the children who are going through school without gluten-free options.   Here is your chance!

Siblings Have Increased Risk of Celiac Disease

Last Updated on March 11, 2023 by the Celiac-Disease.com Staff Leave a Comment

Back when my mother was officially diagnosed with Celiac Disease, we spent a lot of time researching the symptoms of Celiac Disease to see how likely we were also to have it. According to research at the time, it was believed that siblings and offspring had about a 10% chance of also having the disease.

According to a recent report in the September issue of Clinical Gastroenterology and Hepatology, it looks like family members (siblings in particular) are much more likely to have/develop Celiac Disease than was previously thought.

The researchers found that 14 percent were positive for tissue transglutaminase antibodies and 10 percent were positive for endomysial antibodies. The prevalence of celiac disease was 11 percent, of which 54 percent had “silent” disease (mostly severe intestinal villous atrophy). All affected family members carried the at-risk HLA-DQ genotypes. High-risk factors for celiac disease were the HLA-DQ2 genotype (odds ratio 16.1) and being a sibling of a patient with celiac disease (odds ratio 2.5), the authors report.

“Celiac disease is more common in first-degree relatives than previously reported in the United States, with siblings having the greatest risk,” Rubio-Tapia and colleagues conclude. “There is male preponderance of new cases, and many had silent disease despite severe histologic injury.”

In my interaction with people at Celiac events as well as reading stories online on sites like this and message boards, it seems to be pretty common for family members to have Celiac Disease.   I guess this now confirms it.

What are your experiences?  Do you know people that are related and share the disease?

Should Babies at Risk for Celiac Disease Eat Infant Cereal?

Last Updated on March 12, 2023 by the Celiac-Disease.com Staff

If you are pregnant or have an infant that is at high risk for Celiac Disease, here is something you should be aware of. A typical child is supposed to start eating infant cereal at around the age of 6 months old. However, according to a recent study by the Journal of American Medical Association, it looks like children at high risk for Diabetes 1 or Celiac Disease should actually start eating cereal long before that.

According to this post over at WLKY:

They found that children who were exposed to gluten in the first three months of life were five times more likely to be immune to the disease than children who weren’t exposed until later.

“It’s been thought that delaying the introduction of gluten in the infant diet may have a beneficial effect with regarding to preventing celiac disease,” Norris said. “However, our study suggests that’s not the case.”

The American Academy of Pediatrics recommends that babies get only breast milk for the first six months of life, slowly adding cereal into the diet beginning at six months of age. The academy says that some babies may need food as well as breast milk as early as four months of age.

“A lot of factors go into making the decision as to when to introduce foods in to the infant diet,” Norris said. “A parent trying to make this decision should discuss this with their pediatrician to decide what’s best for their baby.”

As always, you’ll want to consult with your doctor before making a decision like this. I always recommend people bring a printout of the article in question (such as the one above) when they have that conversation.

Infant Recipe: Gluten-Free Ground Rice with Apples

Last Updated on February 26, 2023 by the Celiac-Disease.com Staff Leave a Comment

Hunting for some homemade infant baby food recipes? Here at Celiac-Disease.com, we’ve managed to locate a few recipes that can help parents who are looking for gluten-free baby foods they can make for their child at home. Enjoy!

Gluten-Free Ground Rice with Apples Recipe

Ingredients:

  • 1 small eating apple
  • 2 tablespoons ground rice
  • 4 fl oz (110ml) milk or milk substitute
  • 1 tsp reduced sugar jam

Directions:

  1. You can use a microwave to prepare this meal, but allow time for cooling as you could burn your baby’s mouth if you feed it to him too soon.
  2. Core, peel, and slice the apple.
  3. Place it in a small bowl and microwave on high power until soft.
  4. Mash with a fork or pop in the food mill or processor.
  5. Meanwhile, place the ground rice and half the milk into another bowl and mix to form a paste.
  6. Add the remaining milk and microwave on high power for around 4 minutes.
  7. Mix the apple pulp and jam into the rice, cool then serve.

Looking for more baby food recipes?  Check out our Gluten-Free Baby Foods Category!

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